SG, You have my heartfelt best wishes for SGSpouse and yourself.Are there any Lupus research programs? You may want to get involved with them, mostly to get the latest news on progress.I say this because my MIL died of Alzheimer's and both MDH and I are participants in a Memory and Aging project that is trying to understand/define the disease. They have semi-annual progress reports for participants and maybe a similar Lupus research program does the same.Even if today's prognosis is dismal, there may be a glimmer on the horizon.I wish you and SGSpouse the best!PM
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