Thanks for sharing. How are you doing now? My husband died in July with complications due to a genetic disorder we knew he had. We would have been married for 7 years yesterday. I can tell you honestly we would have lived our lives everyday in the same exact way had we known this would have happened. Sometimes there is just nothing you can do. We had a constant battle between living our life together and his medical needs. It was a happy marriage, and he had a good life. He made a decision when he was very young to live a life, and I supported that choice. I tell people that he fit more living in the past ten years of his life than most people have in 70 years. As far as the financial stuff, when you have a genetic disorder that is know it is very hard to get insurance. So we did set our life up based on one income. That has been a help for me. But yes, it can be scary.
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