This is a copy of an Email sent to one or two friends/therapists and a fool or two, it had a *.JPG of a full body bone scan attached. Some of this mail will not make sense without it, if you would like a copy reply offboard. Well, lets brighten up my post, now that I am over the extreme radiotherapy “tummy upsets” and having greatly reduced my morphine intake, on Thursday MDW and I had a comprehensive 75 minute session with my new Oncologist followed by a Friday that was occupied with Kidney function tests.We have settled well into the temporary flat/apartment, further adaptions included a bath lift which means I can bath, entering and leaving, un aided. Sleeping position is still awkward and I doubt that it will ever improve due to the existing damage to both hips and the shin splint type pain I get from my left leg if it is not slightly raised at night, to date it is the only pain that has caused me to take extra “on demand” morphine (of which I have access to “unlimited amounts” ) on 4 occasions.The really good news is that instead of a life expectancy of 6-8 weeks(sic.), depending on the outcome of the kidney tests, the new prognosis is 6-12 months (bearing in mind that these numbers are basically guesses based upon the experience of the clinician) .I attach an image of a bone scan, the darker the area the faster a radioactive tracer is metabolised by cell growth ie. cancer foci (excluding bladder which is a reservoir). The strange thing is that in June we had a fantastic week of tango lessons with Gato and Andrea a couple I consider some of the best tango teachers around. The hip pain, which was my original complaint started 2 or 3 weeks afterwards, too late for most Sports/dance type injuries, however, if you look at the location of the lesions they tie in very well with the areas of high stress at the end of range of movement during many Tango moves, perhaps with the exception of the top of the left shoulder being absent (possibly due to a flawed technique). Ok there is a lot of metastastic lesions bun none appear to be in vital organs apart from the primary, which is good newsBefore I can start the Chemo- I have to have a flu vaccination and if you recall Prior to this I have recently had two separate dental abscesses which have to be extracted and any other potential infections treated as chemo- therapy makes your immune system very weak, so next week involves yet more appointments.I have been overwhelmed by the numbers of friends and colleagues who have visited me and it amazes me just how much more of a relationship develops when you meet people outside of the normal social context, probably because you talk about and discuss things at a greater depth or on different topics. It just goes to prove the great universal truth : “If only I knew then what I know now”.I probably will not be extending the lease on the flat (beyond 3 months) as I think my declining mobility issues can be adequately solved at home by converting the kids TV room into a bedroom, also our new bathroom is better suited for my needs andthe heating system will be better suited to the winter. The prospect of "more time" was very welcome, but it has meant that I have had one or two "early Xmas presents" the most welcome of which was the DVD of series II of Game of Thrones, pity I'll miss series 3-6, as I will not have time to read the books if I am to finish my own writing.My main authorship target is “A Clinical guide to silicone micro-droplet implants in the foot” a subject that I can make the immodest claim that “few people have as much knowledge and experience as me”. I have given several lectures on the subject and also met the originator of the technique, Sol Balkin, on two occasions and followed his work closely.The other book is a partly written childrens book entitled “The Hermit Of Usan” totally illustrated by picture agates like those found, excavated, cut and polished around “The Fishtown Of Usan“ by the aforementioned Hermit under the penname of John Pratchett.The main problem with both of these is the effect of my medication on memory, concentration/focus and motivation as it is hard to “want” when there are opiates in your system. So it’s possibly a busy week coming up perhaps starting the chemotherapy a week tomorrow. Fingers crossed,Cheers,€z
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