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Another small update: the neurologist does not believe the steriods are working, so starting today he'll immediately taper off of those; should be done with them entirely in a week. As he already has (managed) high blood pressure, without marked improvement on such a high dose the risks of taking them are too great for no reward.

Next step is for the doctor to attempt to get the insurance to approve immunotherapy infusions. I suspect this will be a bit of a fight, but they have a documented history of him needing infusions earlier in life, so I believe we'll ultimately be successful.

Right now we (Little Sis and I) are trying to move my mother from thinking day-by-day and into a longer term model. A nurse is coming tomorrow to the house; Little Sis will be there and inquire about help insurance could bring in, or that we could engage ourselves. Plus we need to get a set schedule of days for when we can be there, what days are best for appointments* so one of us can be there, etc.

Sally forth.

impolite
* both have expressed a desire for us to be there at appointments, when possible. So far the appointments have just been super willy nilly, I'm trying to wrangle that into a better setup.
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